September 02, 2020

Health Care Decision-Making

Resources for Professionals and Consumers

Resources for Professionals and Consumers


The Health Care Advance Planning PacketA trio of free resources to walk you through three advance planning steps.

Featured Resources

Consumer Information

The Health Care Advance Planning PacketA trio of free resources to walk you through three steps of advance care planning.

  • Sample HIPAA Right of Access Form for Family Member/Friends 
    This form allows you to direct health care providers and payers to disclose and release protected health information to whomever you name.
  • Health and Financial Decisions: Legal Tools for Preserving Personal Autonomy
    Information on powers of attorney, trusts, health care advance directives, living wills and other planning tools. 2005. Brochures are $1 each. For orders of 100 or more brochures, please paste code AGBULK100 at checkout for a discounted price of $0.50 per brochure.  (please note that the discount code will need to be copied and pasted or manually entered at checkout in order to recieve the discount)

  • Myths and Facts About Health Care Advance Directives
    by Charlie Sabatino, Bifocal, Vol. 37, No. 1 - September 2015
  • Family Conversations About End-of-Life Care 
    Commission Director Charles Sabatino appeared on WAMU’s Diane Rehm radio show August 8, 2012.
  • Additional Health Decisions Resources
    This web page provides resource links to information on thinking about and discussing your goals and values, helping you draft an advance directive, helping health care agents do their jobs well, advance directive forms, advance directive registries, and general end of life resources.
  • In Your Hands: The Tools for Preserving Personal Autonomy

Narrated by the late Helen Hayes, with an epilogue by her son, James MacArthur, this video addresses the legal aspects of planning for incapacity in a clear and positive way, and introduces four legal tools: durable powers of attorney, medical powers of attorney, living wills and trusts. Continue to scroll down for the video.


  • In Your Hands: The Tools for Preserving Personal Autonomy video with Spanish subtitles.

 Lawyer Resources

Legislative Analysis  

Annual Summaries

Health Care Decision-Making in Clinical Settings

This research project launches a major study of how health care providers make health care decisions for patients in a clinical setting who lack capacity and have nothing in writing naming a person to make health care decisions. The research is made possible by funding from the Retirement Research Foundation. Joining the Commission in undertaking this research are the Society for Hospital Medicine and the Society for Critical Care Medicine.

Information for Physicians

POLST: The Seven Deadly Sins - This article appearing in Bifocal Vol. 39, Issue 4 discusses the missteps that undermine a patients’ informed decision-making and why health care providers should be aware of and conscientiously avoid the seven deadly sins of POLST. (April 2018)

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