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September 06, 2024

The Legal Side to End of Life Counseling

Whitney McBay and Jason A. Frank
The PDF, which includes endnotes and footnotes, in which this article appears can be found in Bifocal, Vol. 45 Issue 6.

It All Starts With Cruzan

Cruzan v. Missouri Department of Health (1990) was the first “right to die” case heard by the Supreme Court and returned a 5-4 decision in favor of Missouri that it was acceptable to require clear and convincing evidence when a patient wishes to withdraw life sustaining measures and life support. The Cruzans wanted to take their daughter off of life support after she was left in a persistent vegetative state after an automobile accident. The central issue was Missouri’s requirement of “clear and convincing evidence” for the removal of life support and if the Fourteenth Amendment Due Process Clause was violated in refusing to remove their daughter from life support. The Supreme Court held that this higher standard of evidence was Constitutional since family members of the incompetent individual might make decisions that the incompetent individual would not have wanted. Cruzan v. Director, Mo. Dept. of Health. 497 U.

S. 261 (1990). This case opened the door for mandating the use of an advance directive (AD) to express an individual’s clear and convincing desires regarding end of life care.

The Use of Advance Directives in Withholding or Withdrawing Life Sustaining Treatments

When planning for end of life decision making, it is advisable for someone to express their wishes using a written AD. This appoints an Agent who will act in the best interests of the patient in accordance with their written wishes or what they feel is in the best interest of the patient if those wishes are unknown or unrecorded. So long as the principal created this AD while competent, or ensured that an Agent was informed while competent, their AD would be honored if/when they became incompetent. In the absence of any type of AD, nearly all jurisdictions would say that an incompetent individual cannot provide informed consent. There are only a very small number of cases and places that have allowed for someone deemed incompetent to express wishes for their right to die. Health-Care Decisions Act Summary.

Uniform Law Commission. (2016).

Many States have differing regulations concerning the use of AD to sustain, withhold, or withdraw life-sustaining treatment. It is best to confer with a lawyer who is familiar with that State’s regulations. As an example, the standard Maryland AD specifically addresses terminal conditions, end-stage conditions, persistent vegetative state, and coma. Maryland Code,

Health-General Article § 5-601.

Maryland law also defines “best interest” as determining that the benefits of life sustaining treatment must outweigh the burdens, taking into account a number of factors. The basic framework comes from the 1982 Model Act which primarily addresses consent to treatment. Health-Care Decisions Act Summary. Uniform Law Commission. (2016). However, in 1993 the more comprehensive Uniform Health-Care Decisions Act was promulgated which addresses both the right to make decisions and the right to withdraw or withhold treatment, allowing the patient their right to die. Any adult with capacity or an emancipated minor may give oral or written instructions to the health-care provider which remains in place even after the patient loses capacity. Id. The patient may also execute a written power of attorney including an AD that allows for the Agent to make “any health-care decision that the individual could make while having capacity”. Id. Under the Act, the health-care provider is bound to accept the decisions made by the patient or the agent and must make a good-faith effort to comply. The latest Act provides a solution to those questions and opens the door for topics such as physician-assisted suicide (PAS) and euthanasia to be discussed. End of Life Option Act: Resources & Materials. UCLA Health.

Legal Ramifications and Limitations of Consenting to Physician-Assisted Suicide

As of June 2024, PAS is legal in a number of States. California, Colorado, District of Columbia, Hawaii, Maine, Montana, New Jersey, New Mexico, Oregon, Vermont, and Washington have all passed laws permitting PAS under some circumstances. Death with Dignity

U.S. Legislative Status State Map. Death With Dignity. (2024). All States strictly limit PAS to debilitating physical conditions where there is a clear expression of a desire for PAS made while the patient has full capacity as a part of providing informed consent.

Around the world, euthanasia or assisted suicide is legal in Australia (some states), Austria, Belgium, Canada, Colombia, Germany, Italy, Luxembourg, The Netherlands, New Zealand, Spain, and Switzerland. Buchholz, K., & Richter, F. (2022). Infographic: Where Assisted Suicide is Legal. Statista Daily Data. Generally, PAS has been reserved for terminal illnesses, however there are a few cases in Europe that have authorized this in non-terminal situations. Frederico Carboni was Italy’s first legal assisted suicide after he was paralyzed for 12 years due to a traffic accident. Gleeson, S. (2022). Man Paralyzed 12 Years ago Becomes Italy’s First Medically Assisted Suicide. USA Today.

The Netherlands is at the forefront for when PAS is permitted. Veiligheid, M. van J. en. (2023). Euthanasia, Assisted Suicide and Non-Resuscitation on Request in the Netherlands.

Euthanasia | Government.nl. Euthanasia is allowed if a doctor is satisfied that a patient's suffering is "unbearable with no prospect of improvement" and if there is "no reasonable alternative in the patient's situation", this includes psychological illnesses which are not generally accepted grounds for euthanasia. France-Presse, A. (2022). “Dying with Dignity”: Dutch Mark 20 Years of Euthanasia. Voice of America. The patient, Aurelia, had severe psychological disorders and debilitating mental illness. While these conditions were not terminal, they significantly degraded her quality of life and made living unbearable. The patient was granted

her right to die on her own terms because the physicians concurred that her mental illness was so unbearable that there was no prospect of improvement or reasonable alternative. By law, the request must be made “earnestly and with full conviction”. Additionally, the law states that “a physician can perform euthanasia on a patient with dementia only if such a directive exists, if statutory care is taken and if, in his opinion, the patient is experiencing unbearable suffering with no prospect of improvement.” Veiligheid, M. van J. en. (2023). Euthanasia, Assisted Suicide and Non-Resuscitation on Request in the Netherlands. Euthanasia | Government.nl. Even minors may request euthanasia in accordance with the law.

Question & Answer

  1. Can an Agent under an advance directive be used to authorize physician-assisted suicide?
    1. No. An Agent can only act with the authority granted to them based on an AD. An Agent is not able to facilitate PAS if the individual requesting PAS is incapacitated. For an Agent to assist with PAS would be to risk likely criminal charges.
  2. What if the principal were to instruct an Agent under an advance directive that they would want physician assisted suicide or euthanasia if they were ever incapacitated or suffered from a condition like dementia or advanced Alzheimer’s? Would the Agent be able to act on their wishes?
    1. No. The Agent could not act on their wishes. The principal would need to be able to give informed consent at the time they want PAS. It is not possible in the U.S. to have physician assisted suicide for mental health issues of any kind. This would only be possible in a place like The Netherlands. Again, for an Agent to assist with PAS would be to likely risk criminal charges.

Conclusion

While the need to address end of life care is universally recognized, understood, and accepted, every State and country have different guidelines delineating the scope of end of life care. The United States takes a rather conservative approach, with only a few States allowing PAS. No State allows PAS for mental health issues, or at the direction of an Agent under an AD, even if the desire is clearly stated, where the principal lacks capacity. For an Agent to assist with PAS in such a circumstance, the specter of criminal charges looms large. States have strict guidelines as to when PAS may be allowed. More often, a patient’s decision making is limited to the use of life-sustaining measures, or the decision to withhold or withdraw these measures based on the desires given verbally or through an AD, while competent. Around the globe, some other countries have taken a more holistic approach to end of life care, providing for more autonomy in the decision making and recognizing more situations where PAS or euthanasia may be used.

The Netherlands is at the forefront when it comes to allowing for euthanasia for patients with debilitating mental health conditions where otherwise it would not be allowed, and also allowing for an Agent to consent to PAS when the principal is not able to give informed consent. Even though there are currently several States and countries that have guidelines for PAS and euthanasia, there are many more that are working on recognizing personal autonomy that can and should extend to PAS for mental health conditions and through clear directions through an appointed Agent.

Whitney McBay

Tulane Law School J.D. Candidate, 2025

Jason A. Frank

Professor (Adjunct)

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